My baby is 12 days old born with rocker bottom feet 2 vlv opn in hrt sml cerebal lft eye now opn but lazy hlp?

My son was born Jan/16/2009 with rocker bottom feet and an extra index in his right hand his face looks very normal except for his left eye that will not when the right was open. In the hospital he was born in they noticed a heart murmur louder than normal after 4 days he was sent to the Sick Kids Hospital where they realized they had to do a procedure next day to open a valve, all went well but now he is gathering fluid in his his lungs, his heamoglobin is so low so they did an Ultra-sound of his brain and now found out there is an abnormality in his cebral. However they realize the prosedure is not working so they must do heart surgery. He was full term. We need some understanding about this the survivol rate the neurological the everything we are depressed defeated and yet very very still hopefull.